@cure_fop

@cure_fop has been a member of Linktree for 4 years and joined in September 2021. The social media accounts linked to from @cure_fop are: Facebook, Instagram, YouTube, LinkedIn, X. Besides social media accounts, ifopa has populated their site with Important Announcements about Zilurgisertib Clinical Trial - IFOPA - International Fibrodysplasia Ossificans Progressiva Association, Episode 11: The Reveal | Journey to Discovery, Episode 9: The Collaboration | Journey to Discovery: A Breakthrough Built on Hope, Register: May 12 Peer Support Group for Adults with FOP, Episode 7: The Determination | Journey to Discovery, Episode 6: The Connections | Journey to Discovery, Episode 5: The Technique | Journey to Discovery, Episode 4: The Chance Encounter | Journey to Discovery, Episode 3: The Catalyst | Journey to Discovery, Episode 2: The Question | Journey to Discovery, Episode 1: The Unknown | Journey to Discovery, Register: April 21 Caregiver Support Group, Back to School Resources - Changing Faces Campaign, Isla’s journey with FOP - Changing Faces Campaign, Navigating Kindergarten, FOP Physical and Occupational Therapy Guide, FOP and School Resources, Donate to Join the Pursuit of a Cure | 100% of Funds Go Directly to Research, Earn CMEs: Navigating the Challenges of Managing HO, Episode 12: The Impact | Journey to Discovery, Visit the IFOPA Website, Concerns for Child Abuse in the Diagnostic Journey of Fibrodysplasia Ossificans Progressiva (FOP), Episode 10: The Double Peaks | Journey to Discovery, Episode 8: The Present Meets the Past | Journey to Discovery: A Breakthrough Built on Hope, Watch: Navigating Immunizations and FOP, A Historic First: China FOP Family Meeting, Listen: Strengthening Your Support Network, IFOPA Ability Toolbox Homemade Tool Contest, TECH-CESSIBILITY PROGRAM | Apply by June 1, IFOPA Summer Family Activity Guide, Consider Rare: Suspecting and Diagnosing Fibrodysplasia Ossificans Progressiva (FOP), Help us Invite Your Local Doctor to Our FOP Community, Read: March FOP Connection, Register: April Peer Support Group for Adults with FOP, Register: April Caregiver Support Group, Recommendations for Flu Season, Register: May 19 Caregiver Support Group, ANDECAL Trial Now Enrolling Children 12 and Up and Adults at UPenn, Register: May 28 FOP Bereaved Families Virtual Meeting, Healthy Smile Loading: Dental and Oral Health Resources from the IFOPA, Register: June 8 Peer Support Group for Adults with FOP, Register for the Driving and FOP Webinar, Register: June 16 Gaming and FOP | Advocacy Series Webinar, Take the Global Patient Insights Survey by March 31, Register: June 18 Caregiver Support Group, Urgent Action Required: Federal Funding Pause Threatens Caregiver Services | Caregiver Nation Network, Register: July 26 Passion & Purpose In Daily Life | Advocacy Series Webinar, Garetosmab Biologics License Application Accepted by U.S. FDA, Resource: Talking to Kids About Clinical Trial Closure, FALKON Trial Closing (December 19, 2025), Preliminary Results: OPTIMA Trial (September 17, 2025), Clinical Trials Locations Map, FAQs: Drug Development & Clinical Trials, Watch: Patient Perspectives on Clinical Trial Participation, Watch: Living Better with FOP from Medlive, NEW and Improved FOP Oral Health Hub, Wheelchair Safety and FOP, Watch: Introduction to Using the FOP Treatment Guidelines, ICC Statement on Off-Label Treatments (Updated), Explaining FOP to Children, Ability Toolbox Online Guidebook, Become a Monthly Donor, Donate Your Unwanted Vehicle, Fundraising Ideas, ICC's FOP Medical Guidelines Published in JBMRPlus.